About Fighting Ependymoma


Here at FIGHTING EPENDYMOMA our aim is to support world class research into childhood ependymoma brain cancer. We identify leading experts in the field through our liaisons with National and International Brain Tumour Research organisations and charities and all applications are subject to a comprehensive process to ensure that our remit is fulfilled.

There is no getting away from the fact that research is costly. A Post-Doctoral Research Fellow, for example, costs up to £200,000 for a three year period. This is the level of expertise that is required to get the best results and we want the best for these children.

Ependymoma is the third most common paediatric brain tumour. According to CERN (Collaborative Ependymoma Research Network) the majority of ependymoma tumours in children occur at the back of the brain, in the posterior fossa or 4th ventricle. It is a cancer that can recur either in the same place or sometimes spreading to other parts of the Central Nervous System (CNS). Treatments often involve high risk surgery and or courses of chemotherapy and radiotherapy.

Funding for brain tumours in general is very scarce and for childhood ependymoma it is even worse. We desperately need to change this situation and soon. The more money we can raise the more projects we can support

FIGHTING EPENDYMOMA is dedicated to supporting childhood ependymoma research projects and so we are delighted that we have been able to make a substantial donation of £37,561 to Professor Richard Gundy, Professor of Paediatric Neuro-Oncology and Co-Director of The Children’s Brain Tumour Research Centre, Nottingham. Richard very kindly sent us this message

Funding research into childhood brain tumours is the key to improving diagnosis and treatments and ultimately increasing survival of these dfficult to treat tumours whilst reducing disability rates.